No-one should die of Histiocytosis

Our research programmes provide a beacon of hope for the many children and adults battling Histiocytosis, to ensure this research continues we ask you to pledge your support.

Conference and Events

What’s Happening & When?

Histio UK are pleased to invite you to the 6th Histio UK Forum

Please keep 19th November 2020 free in your diary

Presenting leading Researchers and Clinical practitioners in

Langerhans Cell Histiocytosis (LCH) and Haemophagocytic Lymphohistiocytosis (HLH)

 via webinar, timings to be confirmed expect

HLH  11:00 – 13:00

LCH  13:30 – 15:30

To register your interest please return this email

with LCH, HLH or BOTH in the subject line

NO LATER THAN 1st November 2020

Space is limited, please make sure you express your interest early.


UK Histicytosis Forum
5th UK Histiocytosis Forum
Date: 28th November 2019 Location: Kings Cross-London, Time:11:00-16:30.
This is a free of charge event, space is limited. Please confirm your attendance
by return email. The cut-off date for registration will be Friday 18th October 2019.

Agenda/ Program
11:00-13:00 Session I. Haemophagocytic Lymphohistiocytosis Histiocytosis
a) Late presentations of primary HLH – Claire Booth
b) UK Hyperferritinaemia audits – Ethan Sen/*Meghan Sykes/*Aidan Harris
c) The UK HLH Across Specialty Collaboration (HASC) initiative –
Rachel Tattersall
d) Case-based discussion

13:00- 13:30 Light Refreshment

13:30-14:00 Joe West – Maximising the use of national electronic health data
sources in England to ascertain, register and undertake epidemiologic research
in Langerhans cell histiocytosis and Haemophagocytic Lymphohistiocytosis.

14:00-16:30 Session II, LCH, ECD and the inflammatory myeloid neoplasms
a) Pathogenesis of inflammatory myeloid neoplasms – Paul Milne
b) ECD in the UK: initial report from the UKHR – Matthew Collin/*Tal Munir/
*Catherine Borysiewicz /*Kris Bowles
c) Keynote address ‘ Management of histiocytosis in adults’ Julien Haroche
d) Case-based discussion
* tbc


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