No-one should die of Histiocytosis

Our research programmes provide a beacon of hope for the many children and adults battling Histiocytosis, to ensure this research continues we ask you to pledge your support.

Welcome to the Histio UK Medical Professionals Knowledge Bank website.
Research – together we will find a cure!

A Ground-breaking Partnership Project – Histio UK partners with the HistioNode Research Project funded by the Medical Research Council.

Prof. Matt Collin talks to us & our Histio UK PPPIE Panel (Patient, Parent, Public Involvement & Engagement Panel) about this ground-breaking project covering all aspects of Histiocytosis.
Please listen now and continue to support Histio UK in enabling this amazing partnership research.
Thank You


Histiocytosis UK is a non-commercial partner of the National Institute for Health Research
Appropriate research studies funded through Histio UK’s eligible funding streams (Research Project Grants) are now automatically eligible for NIHR Clinical Research Network (CRN) support and therefore entitled to access NHS support via the NIHR Clinical Research Network.

Please look around and contribute in any way you can.

Knowledge Bank

Medical Guidelines


Professional Development

News Updates

Lets Talk

Histio UK


Your support is vital to ensure that we can continue to deliver our Research and Information Programmes. Thank you.