No-one should die of Histiocytosis

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UK Histiocytosis Advisory Group (supported by CCLG and Histiocytosis UK)

Aims of the meeting
The UK Histiocytosis Advisory Group comprises members of the CCLG Histiocytosis Special Interest Group and adult clinicians who are members of the Histiocyte Society. This small group of clinicians from across the country have a special interest in the management of histiocytic disorders including Langerhans cell histiocytosis (LCH), Juvenile Xanthogranuloma (JXG), Rosai-Dorfman Disease (RDD), Erdheim-Chester Disease (ECD), Malignant Histiocytoses (Subtypes: Histiocytic/Langerhans cell/Interdigitating cell/Indeterminate cell) and related conditions.
• We are keen to provide advice and support to colleagues caring for patients of all ages with clinically challenging forms of these diseases.
• We also aim to sign-post colleagues to relevant open trials, biology studies, registries and tumour banking opportunities.
• The advisory panel will only provide advice on management and this will NOT be an MDT (Multidisciplinary Team) treatment recommendation. Treatment choices remain the decision of the local clinician/multidisciplinary team.



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