No-one should die of Histiocytosis

Our research programmes provide a beacon of hope for the many children and adults battling Histiocytosis, to ensure this research continues we ask you to pledge your support.

Conference and Events

What’s Happening & When?

UK Histicytosis Forum
5th UK Histiocytosis Forum
Date: 28th November 2019 Location: Kings Cross-London, Time:11:00-16:30.
This is a free of charge event, space is limited. Please confirm your attendance
by return email. The cut-off date for registration will be Friday 18th October 2019.

Agenda/ Program
11:00-13:00 Session I. Haemophagocytic Lymphohistiocytosis Histiocytosis
a) Late presentations of primary HLH – Claire Booth
b) UK Hyperferritinaemia audits – Ethan Sen/*Meghan Sykes/*Aidan Harris
c) The UK HLH Across Specialty Collaboration (HASC) initiative –
Rachel Tattersall
d) Case-based discussion

13:00- 13:30 Light Refreshment

13:30-14:00 Joe West – Maximising the use of national electronic health data
sources in England to ascertain, register and undertake epidemiologic research
in Langerhans cell histiocytosis and Haemophagocytic Lymphohistiocytosis.

14:00-16:30 Session II, LCH, ECD and the inflammatory myeloid neoplasms
a) Pathogenesis of inflammatory myeloid neoplasms – Paul Milne
b) ECD in the UK: initial report from the UKHR – Matthew Collin/*Tal Munir/
*Catherine Borysiewicz /*Kris Bowles
c) Keynote address ‘ Management of histiocytosis in adults’ Julien Haroche
d) Case-based discussion
* tbc


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